New York Essential Plan Users Worry: Am I Losing Coverage?

Arlene Cruz Escobar, director of health programs at Make the Road New York, said the group was receiving many calls from recipients who seemed stressed and anxious. “It’s going to be a disaster,” she said.

She said her staff is hearing from frantic families confused by the termination notices — some of them several pages long and filled with language that could be misleading. She pointed to a sentence in the first April notice which reads, “You don’t need to do anything unless your personal situation has changed,” which may have mistakenly given impacted users the impression that their coverage was not at risk or dissuaded them from seeking additional information.

Advocates like Cruz Escobar have been urging the state to act quickly to avert the coverage cliff since last summer, but top legislators tabled the issue — pledging to address the matter during annual budget negotiations that started in January. A delayed state budget was finally unveiled in late May, but failed to include proposals supported by a coalition of lawmakers to use state funds to keep these New Yorkers insured and make plans available for purchase on the state’s health care exchange more affordable. 

In an interview, Danielle Holahan, executive director at New York State of Health, the state-run insurance marketplace, acknowledged that the state’s messaging strategy could be improved. “We agree, they’re not written in plain language,” she said of plan notices that went out in April and May and were required to contain specific legal information. 

She said the department is continuing to work on simplifying additional notices and has been trying to ensure they reach impacted users on multiple platforms such as emails and text messages. The department also recently wrapped up training for their network of assistors who will be contacting impacted New Yorkers about how to buy insurance from the state’s health care exchange website.

Holahan also acknowledged that the overall timing of the notices has been complicated by delayed action from the federal government and a drawn-out state budget process. When the state first learned of the federal cutbacks last year, health officials devised a strategy to retool the Essential Plan — averting a worse-case scenario that could have ended the program entirely for all 1.7 million New Yorkers. After months of delay amid a federal government shutdown, the state finally secured approval to move forward with a scaled-back version of the Essential Plan in late March 2026. 

“It was making the best of a very bad situation for New York,” Holahan said of the now scaled-back Essential Plan. She also noted that health officials had been following the state budget process closely to see whether any changes would be made for the Essential Plan. “There’s been a lot of moving parts.”

Earlier this month, Hauptman was able to transfer Cody — who struggles with mental health issues — to Medicaid. She currently works as a family peer advocate on Long Island, helping other families navigate mental health challenges. 

Hauptman, a single mother, said that adding Cody to her current employer-provided coverage or purchasing a plan on the state’s health care exchange are both out of reach financially. She is now considering relocating to a city with a lower cost of living or finding a new job that provides more affordable employer-sponsored health care plans. 

Cruz Escobar urged the state to ramp up its awareness campaign around Essential Plan terminations, use plain and easier-to-understand language, and include case-specific information in notices and other tools like state websites that clearly spell out how much marketplace plans could cost every month based on household income.

“This is a really big learning curve for families; there needs to be a lot more education,” said Cruz Escobar, who previously worked as a health care navigator and routinely spent hours with clients explaining concepts like deductibles, coinsurance and co-pays. “Many people are going to be caught off guard because, maybe for the first time, they’ll have to purchase private insurance. That’s a whole different experience on how to utilize that coverage.”

Getting the message fully across to impacted clients like Doris Velasquez has been a hurdle. Velasquez works as a home attendant and relies on the plan to manage her high blood pressure and migraines, chronic health conditions that have previously landed her in the emergency room. Her diabetic husband and college-age son are also covered by the Essential Plan — all three are slated to lose their coverage in July. 

Like many Essential Plan users, the family was previously covered under Medicaid and shifted to the Essential Plan three years ago as their household income grew. Speaking through a Spanish translator, Velasquez told Focus she understands their coverage is ending, but is unsure whether her family can afford to buy insurance and isn’t sure what to do next.

Cruz Escobar said her staff have been helping clients navigate the state’s marketplace, only for clients to be discouraged by costly monthly premiums and high deductibles. Eligibility for tax credits that reduce the cost of monthly premiums depends on projected household income — math that can get complicated for gig workers and later result in an IRS bill during tax season. “A lot of people in these income levels are people who have multiple jobs and multiple part-time jobs or who bounce around from job to job and their income is inconsistent,” she said.

State health officials acknowledged that it is common for household income to fluctuate throughout the year for many on the Essential Plan, meaning a monthly premium can be hard to meet during specific months, and coverage might change when participants recertify their income if they shift across different tiers. They estimate impacted Essential Plan users will be eligible for a state exchange plan with an average monthly premium of $250 after tax credits and a deductible of $2,150. By comparison, the Essential Plan has no monthly premiums and no deductibles.

Holahan said that the department’s current projections indicate anywhere from 150,000 to 200,000 impacted Essential Plan users will be unable to buy insurance or get coverage through their employers and therefore will remain uninsured. But other estimates anticipate far more severe outcomes — the progressive think tank Fiscal Policy Institute predicts fewer than 70,000 of the roughly 450,000 impacted users will be able to buy insurance, leaving the vast remainder uninsured.

Sam, a 40-year-old artist and dog trainer in Queens, is still unclear on the status of her Essential Plan coverage. She received a notice last year from the state, warning that her coverage might be at risk in 2026 due to upcoming federal changes, but said she never received any follow-up message. When she called the state and her insurer earlier this year, she was told she would be unaffected by the July termination.